Posts tagged " Down syndrome "

The crappiest part of having a non-verbal child

February 23rd, 2017 Posted by Misc No Comment yet

by Whitney Barthel posted in Mom Stories I hate it when people are shocked to learn that Daniel is 6 years old. I hate it that I have to speak for him when strangers ask him questions like “Oh, what’s your name?” I hate it that he can’t whisper what he wants into Santa’s ear… Read more »

What you NEED to know about your special-needs child’s future

October 21st, 2016 Posted by Misc No Comment yet

by Whitney Barthel posted in Mom Stories At a craft fair in April of 2014 my booth was across from a woman selling dried noodles. Unfortunately, it was an unseasonably warm day and instead of people looking for something to do inside — like a craft fair — everyone was outside enjoying the first hints… Read more »

Belgium says stop trying to “fix” your special-needs child

July 8th, 2016 Posted by Misc No Comment yet

by Whitney Barthel posted in Mom Stories There is one thing that is true of almost every special-needs parent I have encountered: we all have a tremendous amount of guilt. We feel guilty for skipping therapy, for getting frustrated, and for basically doing anything that isn’t spending time to help our special child overcome whatever… Read more »

What I should have said when I was asked to abort my baby

June 10th, 2016 Posted by Misc No Comment yet

by Whitney Barthel posted in Mom Stories My Daniel is now 5 years old. While in my 22nd week of pregnancy I got a prenatal diagnosis that he would be born with Down syndrome. What shocked me the most with this unexpected pregnancy was not the pregnancy itself, the reaction of my friends and family,… Read more »

Above everything, special-needs parents fear this

April 8th, 2016 Posted by Misc No Comment yet

by Whitney Barthel posted in Mom Stories One of the hardest things about having a child with special needs is thinking about the future. If you have a child with a shortened life expectancy, it pains you to think about having to bury your own child. And if you have a child who quite possibly… Read more »

The moment I realized being “just a mom” is enough

April 1st, 2016 Posted by Misc No Comment yet

by Whitney Barthel posted in Mom Stories If the life expectancy were 120 years plus, I would say I started my quarter-life crisis about 18 months ago. I recently read that a quarter life crisis is a time of emotional turmoil when you are trying to figure out what exactly you want to do for… Read more »

Why I’m so thankful for my special-needs mommy friends

March 28th, 2016 Posted by Misc No Comment yet

by Whitney Barthel posted in Mom Stories At times, one of the hardest things about having a child with special needs isn’t the actual act of taking care of someone who needs more help at times, it’s the way your relationship with everyone in the world changes. It’s the way most of your friendships change… Read more »